Policy Making in Newborn Screening Needs a Structured and Transparent Approach.
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Open Access
Type
Article
Language
en
Date
2017-03-21
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Title
Policy Making in Newborn Screening Needs a Structured and Transparent Approach.
Translated Title
Published in
Front Public health 2017; 5(1):53
Abstract
Newborn bloodspot screening (NBS) programs have expanded significantly in the past years and are expected to expand further with the emergence of genetic technologies. Historically, NBS expansion has often occurred following ad hoc consideration of conditions, instead of a structured and transparent approach. In this review, we explore issues pertinent to NBS policy making, through the lens of the policy cycle: (a) agenda setting, (b) policy advice, (c) policy decision, (d) implementation, and (e) evaluation.