How ownership rights over microorganisms affect infectious disease control and innovation: A root-cause analysis of barriers to data sharing as experienced by key stakeholders.
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Authors
Ribeiro, Carolina Dos Svan Roode, Martine Y
Haringhuizen, George B
Koopmans, Marion P
Claassen, Eric
van de Burgwal, Linda H M
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ArticleLanguage
en
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How ownership rights over microorganisms affect infectious disease control and innovation: A root-cause analysis of barriers to data sharing as experienced by key stakeholders.Published in
Plos One 2018; 13(5);e0195885Publiekssamenvatting
Genetic information of pathogens is an essential input for infectious disease control, public health and for research. Efficiency in preventing and responding to global outbreaks relies on timely access to such information. Still, ownership barriers stand in the way of timely sharing of genetic data from pathogens, frustrating efficient public health responses and ultimately the potential use of such resources in innovations. Under a One Health approach, stakeholders, their interests and ownership issues are manifold and need to be investigated. We interviewed key actors from governmental and non-governmental bodies to identify overlapping and conflicting interests, and the overall challenges for sharing pathogen data, to provide essential inputs to the further development of political and practical strategies for improved data sharing practices.PMID
29718947ae974a485f413a2113503eed53cd6c53
10.1371/journal.pone.0195885
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