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    Policy framework for Prenatal and Neonatal Screening

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    Authors
    Vermeulen HM
    van Velzen R
    Abbink F
    Type
    Report
    Language
    en
    
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    Title
    Policy framework for Prenatal and Neonatal Screening
    Translated Title
    Beleidskader Pre- en Neonatale Screeningen
    Publiekssamenvatting
    Het Beleidskader Pre- en Neonatale Screeningen geeft een overzicht van de wettelijke en beleidsmatige kaders voor vijf screeningen die tijdens de zwangerschap en kort na de geboorte preventief worden aangeboden. Deze kaders zijn door het ministerie van Volksgezondheid, Welzijn en Sport (VWS) vastgesteld. Er zijn drie screeningen voor het ongeboren kind: op het syndroom van down, op enkele infectieziekten zoals hiv, en lichamelijke afwijkingen. De screeningen vlak na de geboorte betreffen het gehoor van het kind en de hielprik. <br> <br>Het RIVM voert sinds 2006 de regie op de bevolkingsonderzoeken en bewaakt vanuit die rol de kwaliteit, bereikbaarheid en betaalbaarheid ervan. Het beleidskader is een instrument om de regie te voeren. De uitvoering ligt bij de uitvoeringsorganisaties. <br> <br>Het beleidskader beschrijft eveneens hoe partijen samenwerken die betrokken zijn bij de voorbereiding van, besluitvorming over en uitvoering van de pre- en neonatale screeningen. Voor een goede kwaliteit van de screening is het immers van belang dat alle logistieke en inhoudelijke processen goed op elkaar aansluiten. Vooral de 'overgang' van een uitslag van een bevolkingsonderzoek naar een diagnose en behandeling is een belangrijke stap, waarvoor partijen binnen het bevolkingsonderzoek en de zorg gezamenlijk verantwoordelijk zijn. <br> <br>Daarnaast worden de kaders weergegeven die relevant zijn voor de nadere uitwerking van de draaiboeken van de screeningen. Deze draaiboeken zijn vooral gericht op de wijze waarop de screeningen worden uitgevoerd. <br> <br>Het beleidskader zal regelmatig worden getoetst en indien nodig aangepast aan de actualiteit. <br>
    The Policy Framework for Prenatal and Neonatal Screening provides an overview of the legal and policy-related frameworks for five preventive screening programmes available during pregnancy and immediately following childbirth. These frameworks have been defined by the Dutch Ministry for Public Health, Welfare and Sport (VWS). There are three screening tests for the unborn child: for Down's, Edwards' and Patau's syndromes , for a number of infectious diseases, including HIV, and for physical abnormalities. The neonatal screening tests concern the child's hearing and the neonatal heel prick. <br> <br>The National Institute for Public Health and the Environment (RIVM) has been responsible for national population screening programmes since 2006 and in that role monitors the quality, accessibility and affordability of them. The policy framework is an instrument that enables RIVM to perform its supervisory tasks, while responsibility for the conduct of screening programmes lies with the operational organisations. <br> <br>The policy framework also sets out the parameters for collaboration between parties involved in the preparation of, decision-making on and conduct of antenatal and neonatal screening, the reason being that adequate alignment of all logistical and substantive processes is key to ensure that the quality of screenings is up to par. In particular, the transition from population screening to further diagnostic tests (medical examinations if indicated) and treatment is a key step for which the parties within the population screening programme and the care chain bear joint responsibility. <br> <br>In addition, the framework sets out relevant requirements for the elaboration of screening plans. The main focus of these plans is on the way in which screenings are conducted. <br> <br>The policy framework is checked annually to confirm it is up to date and amended if necessary. <br>
    Publisher
    Rijksinstituut voor Volksgezondheid en Milieu RIVM
    Sponsors
    VWS
    URI
    https://rivm.openrepository.com/handle/10029/621920
    Collections
    RIVM official reports

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